I’ve been off-line since my last Spinraza treatment. I’m sick. I have one of those horrid summer colds!
Yesterday, my niece was helping me turn, and she had her hand on my rib cage. She said, “Your breathing feels like a cat purring.”
The sad thing is… She’s RIGHT! I had been saying that I sound like I inhaled an aquarium, but I like her description better.
I have had a hideous cold since January 3. I probably should have gone to the doctor, but I am as stubborn as all get out. I’ve been taking it easy and drinking water. It still sounds like I have inhaled an aquarium!
Yesterday, though, I had a doctor’s appointment to change my tracheostomy tube. After he did that, Dr. C listened to my lungs and prescribed a broad spectrum antibiotic. I took the first dose (one dose daily for five days) and today was the first day I woke up without needing suctioning.
Maybe I have turned a corner!
This really has put a cramp on all my writing goals. My energy level and attention span have been quite low.
Again, today, that has improved. I have logged about 500 words today. That doesn’t help with the 14 days that I didn’t do much, though. Still, I still have time to catch up with my goal of writing 100,000 words this year. That’s almost 8500 per month. It is almost doable.
I also got some more interesting news! In August, it turned out that I couldn’t take Spinraza because they couldn’t get through my spinal fusion. Here is the latest info: