I still think it was a good idea. I need to learn how to speak my needs more clearly and openly, I’m not afraid to share others’ needs. This is just a downside to my being “a hardheaded woman from … Continue reading →
We can’t have a party without something fun to drink. How about ROMULAN ALE? Not only does it match my uniform, it is forbidden in 15 planetary systems. Here is the link to the non-alcoholic version. Virgin Romulan Ale Here … Continue reading →
There are so many folks who need additional help with funding medical needs! I found a group who helps with that. Take a look at HELP HOPE LIVE. They are helping me get that bed funded, and there is a … Continue reading →
Well! That was fun (NOT)! You know the little plugy-iny-thingy place that connects the power plug to the laptop? It wouldn’t actually connect and the battery was lasting like… 45ish minutes. I pulled every trick I could think of. I … Continue reading →
I’m behind, and August has barely started! It is SPINAL MUSCULAR ATROPHY month. Yes, it is still weird to me to celebrate a disease, but celebrating people who have rich and full lives with SMA is kind of cool. In … Continue reading →
Lisa Reads: Employment Options: The Ultimate Resource for Jobseekers with Disabilities and Other Challenges by Paula Ruben Viellet (My Employment Options) I am distinctly ambivalent about this book, but I will give it tentative positive review. After all, it is … Continue reading →
Yes… Earlier this week I had my first step in my adventures with Spinraza. Other than getting lost and accidentally taking a tour of Methodist Hospital and the associated parking towers, it really wasn’t a bad experience. Of course, there … Continue reading →
There is a treatment for Spinal Muscular Atrophy, the neuromuscular disease that I have. There are also several others coming down the pike, but… To the best of my knowledge, only one is currently deemed fit for public consumption. It … Continue reading →
Like most people with SMA2, I started to learn how to hire and train caregivers at a young age. I was 12. I didn’t particularly care to wear the “Human Resources” at at that age. I still don’t. I DO … Continue reading →
I am in Conroe (near I-45 and 1488) and am looking to create a caregiving team for myself to provide me with assistance seven days a week. Initially, I am looking for 2 more part-time caregivers to cover three days … Continue reading →
