It Is Good to Sleep!

I have been using this bed for a week. It is WONDERFUL to not have to have someone wake up to turn me twice a night, both for my sake and theirs. While it could be “placebo effect,” my feet feel slightly warmer in the morning. My respiratory system hasn’t shown much of a difference, but I’m not surprised – we will see what happens when I’m sick. I have had one small bout with sciatic pain, but it ended quickly.

Putting the night routine together is easier. Instead of being balanced and surrounded by pillows, I only put one small one to protect my tailbone. We move the gastric tube into a position that will not bother anything – especially my face. I get prepared for bed as usual otherwise. Once I sit up a little bit, so I can manage secretions, we can switch like controls.

Slowly and quietly, the bed rotates 30° to the left. 30 minutes later, it rotates 30° to the right. This keeps happening until we turn it off in the morning.

The first night, I startled when some of the turns began. I wasn’t scared or anything. It was just DIFFERENT than what I was used to. I was only awake for a few seconds each time.

Now, I sometimes wake up once or twice a night. It isn’t always connected to turning. (The ice dropping in the refrigerator is noisy, but I don’t think it’s that, either.) Anyhow, I usually fall asleep right away.

If I’m wide awake, I listen to Lutheran Talk Radio or an audiobook for a little while. I’ve been waking up early, sometimes 6 or 6:30 AM. Once again, I listen to something until someone is ready to work with me-usually around 7:30 AM or a little bit before.

More later…

Funding Came through: “Magic Bed” Is Here

I Intended To Take A Few Pictures, But My Phone Battery Was Dead

My spinal muscular atrophy comes along with several medical issues. I have lousy circulation, to the point that I’m always cold enough to claim to be part lizard. My tracheostomy, etc. further prove that I have respiratory issues.

About 5-10 years ago, I heard about a tool that I was certain would help with both the circulation and the breathing issues. It comes with the added benefit of not needing someone to turn me regularly.

Funding medical equipment is sometimes a cluster of exercises in creativity and networking, but I will go into that some other time.

For now, I’m just going to say that the bed is here. My family and I get to sleep the whole night through. The Probed Medical Freedom Bed will keep me moving all night, making small position changes like everyone else. It will keep the blood moving and keep secretions from “puddling” in my lungs.

Details to come after I use the bed tonight. 🙂