Spinraza III

Landscape with Tree and Grass at Sunset
Landscape with Tree and Grass at Sunset-Photo on Visual Hunt

 

My Spinraza Loading Dose III is in the rearview mirror. Yes, it went well, again. While I don’t think I will ever consider a lumbar puncture to be ROUTINE, it was pretty much a routine procedure.
So far, I haven’t had any ill effects. Although today, my lower back feels “tired,” and my right leg feels like it woke up from being numb.

It isn’t pain, and I can live with that!

The progression of Spinal Muscular Atrophy is stopped, or at least slowed. (That seems to be what the literature shows, anyhow.) On Thursday morning, I was able to open and close my left hand. I haven’t been able to do that in… I don’t know how long. While I haven’t mastered that superpower in my right hand, my index finger can grip a little bit.

Saturday evening and today, I’m not quite as strong with either of those. But they are still better than they used to be.

Where do I go from here? My final loading dose is towards the end of the month. I will continue to rejoice in the life I have and any small gains that this medicine has brought me.


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