The second loading dose of Spinraza is in the rearview mirror and the third dose is in front of me.

It went smoothly again. I don’t know that I will ever think of transforaminal lumbar punctures as ROUTINE, but I might be able to get comfortable with them. It’s a good thing… Spinraza isn’t a magic bullet. It’s not “one and done.” It’s a little bit more like insulin is to the diabetic.

I can live with that!

I do think I am seeing benefits. Granted, I’m not benchpressing anything yet. I have not been climbing ladders or stairs.

Things are much more subtle. I had WAY more than 50 years of muscle disintegration. It’s a bit much to expect instant superhero.

My breathing is better. I think my thumbs have fractionally more strength. It’s possible that my digestive tract is becoming more manageable.

All wins, in my book!

6 Replies to “Spinraza II”

  1. Lisa! I love this report on Spinraza II! Every little bit of strength is gift from God via the hands and minds of those He created! THIS is good work through them. I’m so grateful for any benefit you recieve. Love you, Sondra

  2. Praise the Lord! I’m very glad you are responding to this. Every bit can help and hopefully add up.

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