Yes… Earlier this week I had my first step in my adventures with Spinraza.
Other than getting lost and accidentally taking a tour of Methodist Hospital and the associated parking towers, it really wasn’t a bad experience.
Of course, there was some of the “hurry up and wait” that always happens with medical procedures. Of course, I was nervous… THEY WERE STICKING A NEEDLE IN MY SPINE, TAKING SPINAL FLUID OUT AND REPLACING IT WITH OTHER STUFF!
Just the idea makes the hair want to fall out!
I got changed into that fashionable hospital gown, gave necessary samples to make sure I’m okay, and equipment installed in case they needed to give me an IV med, and headed to the procedure room.
I was laying on my side and was strapped down. (Perhaps they expected me to leap around the room once they finished?)
They quickly located the spot and inserted the needle. It wasn’t COMFORTABLE, but it didn’t hurt… Except for when one of my nerve endings got touched. THAT caught my attention, but it was only for a split second.
The whole thing probably took 15 minutes. No headache, no pain… Tiny bruise that is very hard to find.
Since then, I have been dreaming all surfaces under my skin were vibrating as things slowly reawakens. Good dream!
I’m not really sure when to expect any possible changes, or exactly what to expect.
Next dose is in about two weeks…